Friday, September 19, 2008

Some good, some bad.

I think we are only allowed a certain amount of good news at a time.

Jill's MRI seemed to go well. I don't have the official results, but I have an uncanny ability to read the techs. I don't buy their "The doctor has to interpret this" spiel. They know what is normal or not. I am pretty sure, there was nothing remarkable about Jill's MRI. I was much relieved.

Then today Emmi had an Audiology appointment. She finally got her OPUS system. Sort of. They sent the wrong color for one side, so they used her left side equipment to program both sides. So she is up and running on both sides, but we have no back-ups until Oct 1. We will go back then to get the other set. But at least she is hooked up, and reaping the benefits of the new system! Today for the first time ever, she listened to an ipod! She loved it. I would be ecstatic.

Except I am also processing the fact that she lost one more electrode. Which puts her below functioning level on the left side. She will have to be re-implanted. Another surgery. We just can't win.

6 comments:

Linda said...

I'm so sorry, Tricia. We'll help you and Emmi, too, get through this. She'll be better than ever!

I am Trish Marie said...

Well, at least we know why she has been such a bear this past week. It is always something to do with the implant! Of course, that means that I have to deal with this attitude for at least two more months!

Linda said...

That's right. You can always tell by her behavior that something is going wrong with the implant, can't you? She's usually so happy, but the last time she arrived here, she arrived here with an attitude for sure! I would have one, too, if something were buzzing in my head all the time or if one side had gone silent, and I guess we just don't know which it is for her.

I am Trish Marie said...

Well she had another short, so it was probably buzzing or something. Kind of picking up "road noise" if you will. They have been shut off, which means she now can't hear as well, but at least doesn't have some horrible sound in her ear.

Hetha said...

How many electrodes are out? Ethan had 5 shorting out and turned off at one point (he is cochlear freedoms) but they mysteriously came back on within a few weeks and we avoided having to be reimplanted. That sucks so bad though and I totally get what you're saying, it's too much to ask to have good news for more than five minutes before some shit has to come along and lay it out. So Sorry for you guys. Hopefully you've got that Starbucks by now. We lost power here in Ohio from Ike for 6 days! We got the 80mph winds and our whole city was taken down. It was weird. So I can relate to the Starbucks withdraw.

Here It Comes said...

She is down 5 out of 12. And one is running high. Following the pattern of the others, it will surely go by the end of this month.